Blog | Rare Disease Support

My Brilliant, Beautiful Girl with a Learning Disability.

So Ireland is now in Grade 4 and although I have always known Ireland has to try very hard academically in almost every subject, I have...

Why We Do What We Do!

Having a diagnosis of a rare disease or being the caregiver of a person with a rare disease can be incredibly challenging. We are here...

How Far Can We Go!

In the earliest days of my daughter Ireland's diagnosis I prayed for answers, I prayed for any type of direction and what I was suppose...

Grow Your Blog Community

We want you to know our story and we really want to hear yours! Please share it here with us. What can members do? Members can follow...

She is growing faster then she is able to keep up with.

She's 9 years old now. Almost 10. She will be an entire decade old in January. She's sassy and sweet and oh so very smart. She loves...

Mommy why am I different?

So there we are the two of us driving in to town to grab a few things to make with dinner and Ireland who is now heavy enough and tall...

Our Trip To Holland

It was May 9th, 2008 and I had been dating this incredible guy for only a few months. He was in the military, posted in Petawawa...